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H H S Department of Health and Human Services
Health Resources and Services Administration
Blood Cell Transplant

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Website Content Inventory

This inventory of website content:

  • Was created as required by Section 207(f)(2) of the E-Government Act of 2002
  • Is intended to be comprehensive, and to represent website content for the C.W. Bill Young Cell Transplantation Program and all contracts under the Program

For more information about the website content inventory and the E-Gov Act, please visit these links:

The tables of website content, below, use the following definitions:

Status:

  • C: currently available on a website
  • E: exists in some form, but is not on a website
  • D: needs to be developed

Priority:

  • Priority 1: Required by law, regulation, Presidential directive, or other official directive, or to ensure national security.
  • Priority 2: Mission-critical and essential for program operations, but not required by law, regulation, or Presidential directive (that is, information or services tied directly to an agency's mission or strategic plan).
  • Priority 3: Frequently requested information or services that would improve business processes and/or customer service to the public. (For example, most commonly used forms, documents, applications, transactions, etc.)
  • Priority 4: Other information.

Information for the General Public

InformationStatusPriorityPublication
Schedule
Program information
Advisory CouncilC1Available
Legislative overviewC3Available
Program contracts' summaries and contractorsC3Available
Program assessmentsC3Available
Program data
Registry dataC3Available
Registry transplant dataC3Available
National Cord Blood Inventory dataC3Available
National transplant survival outcomes dataC2Available
National transplant data request formC3Available
National Transplant Center Specific Outcomes ReportC1Available
Program research
Research data and published materialsC2Available

 

Information for Marrow Donors

InformationStatusPriorityPublication
Schedule
The need for more marrow donors
Why a large and diverse registry of potential volunteer marrow donors is needed to increase the chances for all patients to find a matchC2Available
Joining the registry
How to join the registry through local donor drives and recruitment eventsC2Available
How to join the registry onlineC2Available
Donating marrow and PBSC
Marrow and peripheral blood stem cell (PBSC) transplantation and donation informationC2Available

 

Information for Expectant Parents

InformationStatusPriorityPublication
Schedule
The need for cord blood donation
Why increasing the number of public cord blood units available for transplantation is importantC2Available
Options that expectant parents may have as an alternative to discarding their baby's cord blood
Public donation, including the process and how to donateC2Available
Family bankingC2Available
Directed donationC2Available
ResearchC2Available

 

Information for Patients

InformationStatusPriorityPublication
Schedule
Educational information
Disease and treatment informationC2Available
Marrow and umbilical cord blood transplant information, including the search process, matching, procurement, transplantation, and post-transplant careC2Available
Choosing a transplant centerC2Available
Planning for transplant costsC2Available
Registry search
Search the registry for potential matchesC2Available
Access to search progressD2To be determined
Support resources
Case management resourcesC2Available
Patient-related organizationsC3Available
Patient education and support eventsC3Available
Program data
Registry dataC3Available
Registry transplant dataC3Available
National Cord Blood Inventory dataC3Available
National transplant survival outcomes dataC2Available
National transplant data request formC3Available
National Transplant Center Specific Outcomes ReportC1Available

Information for Physicians and Healthcare Professionals

InformationStatusPriorityPublication
Schedule
Educational information - hematopoietic stem cell transplantation
Advances in autologous and allogeneic transplantationC2Available
Transplant indications, timing, and referralC2Available
Searching for an unrelated marrow donor or umbilical cord blood unitC2Available
Medical education programs and materialsC2Available
Program data
Registry dataC3Available
Registry transplant dataC3Available
National Cord Blood Inventory dataC3Available
National transplant survival outcomes dataC2Available
National transplant data request formC3Available
National Transplant Center Specific Outcomes ReportC1Available
Program research
National Marrow Donor Program Research Sample Repository inventory, query tool, and request procedureD2To be determined
Research data and published materialsC2Available