This inventory of website content:
- Was created as required by Section 207(f)(2) of the E-Government Act of 2002
- Is intended to be comprehensive, and to represent website content for the C.W. Bill Young Cell Transplantation Program and all contracts under the Program
For more information about the website content inventory and the E-Gov Act, please visit these links:
- Suggested Process for Developing Priorities and a Publication Schedule
- Section 207 of the E-Government Act of 2002
The tables of website content, below, use the following definitions:
Status:
- C: currently available on a website
- E: exists in some form, but is not on a website
- D: needs to be developed
Priority:
- Priority 1: Required by law, regulation, Presidential directive, or other official directive, or to ensure national security.
- Priority 2: Mission-critical and essential for program operations, but not required by law, regulation, or Presidential directive (that is, information or services tied directly to an agency's mission or strategic plan).
- Priority 3: Frequently requested information or services that would improve business processes and/or customer service to the public. (For example, most commonly used forms, documents, applications, transactions, etc.)
- Priority 4: Other information.
On this page:
Information for the General Public
Information for Marrow Donors
Information for Expectant Parents
Information for Patients
Information for Physicians and Healthcare Professionals
Information for the General Public
Information for Marrow Donors
Information for Expectant Parents
Information for Patients
Information for Physicians and Healthcare Professionals
Information for the General Public
| Information | Status | Priority | Publication Schedule |
|---|---|---|---|
| Program information | |||
| Advisory Council | C | 1 | Available |
| Legislative overview | C | 3 | Available |
| Program contracts and contractors | C | 3 | Available |
| Program assessments | C | 3 | Available |
| Program data | |||
| Biennial report | C | 1 | Available |
| Registry data | C | 3 | Available |
| Registry transplant data | C | 3 | Available |
| National Cord Blood Inventory data | C | 3 | Available |
| National transplant survival outcomes data | C | 2 | Available |
| National transplant data request form | C | 3 | Available |
| National Transplant Center Specific Outcomes Report | D | 1 | Spring 2011 |
| Program research | |||
| National Marrow Donor Program Research Sample Repository inventory, query tool, and request procedure | D | 2 | To be determined |
| Research data and published materials | C | 2 | Available |
Information for Marrow Donors
| Information | Status | Priority | Publication Schedule |
|---|---|---|---|
| The need for more marrow donors | |||
| Why a large and diverse registry of potential volunteer marrow donors is needed to increase the chances for all patients to find a match | C | 2 | Available |
| Joining the registry | |||
| How to join the registry through local donor drives and recruitment events | C | 2 | Available |
| How to join the registry online | C | 2 | Available |
| Donating marrow and PBSC | |||
| Marrow and peripheral blood stem cell (PBSC) transplantation and donation information | C | 2 | Available |
Information for Expectant Parents
| Information | Status | Priority | Publication Schedule |
|---|---|---|---|
| The need for cord blood donation | |||
| Why increasing the number of public cord blood units available for transplantation is important | C | 2 | Available |
| Options that expectant parents may have as an alternative to discarding their baby's cord blood | |||
| Public donation, including the process and how to donate | C | 2 | Available |
| Family banking | C | 2 | Available |
| Directed donation | C | 2 | Available |
| Research | C | 2 | Available |
Information for Patients
| Information | Status | Priority | Publication Schedule |
|---|---|---|---|
| Educational information | |||
| Disease and treatment information | C | 2 | Available |
| Marrow and umbilical cord blood transplant information, including the search process, matching, procurement, transplantation, and post-transplant care | C | 2 | Available |
| Choosing a transplant center | C | 2 | Available |
| Planning for transplant costs | C | 2 | Available |
| Registry search | |||
| Search the registry for potential matches | C | 2 | Available |
| Access to search progress | D | 2 | To be determined |
| Support resources | |||
| Case management resources | C | 2 | Available |
| Patient-related organizations | C | 3 | Available |
| Patient education and support events | C | 3 | Available |
| Program data | |||
| Biennial report | C | 1 | Available |
| Registry data | C | 3 | Available |
| Registry transplant data | C | 3 | Available |
| National Cord Blood Inventory data | C | 3 | Available |
| National transplant survival outcomes data | C | 2 | Available |
| National transplant data request form | C | 3 | Available |
| National Transplant Center Specific Outcomes Report | D | 1 | Spring 2011 |
Information for Physicians and Healthcare Professionals
| Information | Status | Priority | Publication Schedule |
|---|---|---|---|
| Educational information - hematopoietic stem cell transplantation | |||
| Advances in autologous and allogeneic transplantation | C | 2 | Available |
| Transplant indications, timing, and referral | C | 2 | Available |
| Searching for an unrelated marrow donor or umbilical cord blood unit | C | 2 | Available |
| Medical education programs and materials | C | 2 | Available |
| Program data | |||
| Biennial report | C | 1 | Available |
| Registry data | C | 3 | Available |
| Registry transplant data | C | 3 | Available |
| National Cord Blood Inventory data | C | 3 | Available |
| National transplant survival outcomes data | C | 2 | Available |
| National transplant data request form | C | 3 | Available |
| National Transplant Center Specific Outcomes Report | D | 1 | Spring 2011 |
