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Office of Patient Advocacy/Single Point of Access: Standards & Measurements

Monitoring the performance of the C.W. Bill Young Cell Transplantation Program (Program) against specific standards is key to helping more patients have a successful bone marrow or umbilical cord blood transplant.

The Office of Patient Advocacy/Single Point of Access, one component of the Program, has two areas of focus:

• The Office of Patient Advocacy provides help, support, and understanding to patients and families facing the crisis of a life-threatening illness, from diagnosis through survivorship.
• The Single Point of Access refers to one electronic system that is used to search the Program's registry for both unrelated marrow donors and cord blood units. Doctors, transplant center coordinators, as well as patients and their families, can use this system to search the registry.

Performance standards for the Office of Patient Advocacy/Single Point of Access describe:

• Number of bone marrow and cord blood transplants performed. This includes reporting the numbers of transplants performed for patients from these racial or ethnic heritages: American Indian or Alaska Native, Asian, Black or African-American, Native Hawaiian and Other Pacific Islander, and Hispanic or Latino.
• Search process accuracy, efficiency, and timeliness.
• Information provided to patients and health care providers.
• Advocacy services that help reduce barriers to transplant.

The Office of Patient Advocacy/Single Point of Access regularly reports performance measurements to HRSA.