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Registry Data

Data about the number of potential marrow donors and donated cord blood units listed on the Registry of the C.W. Bill Young Cell Transplantation Program (Program), including the National Cord Blood Inventory (NCBI), are reported annually.

Increasing the number of marrow donors and cord blood units on the Registry is one requirement of the Program. To help more people who have difficulty finding a matching donor, special emphasis is placed on registering marrow donors and cord blood units from these communities:

  • Black or African-American
  • American Indian or Alaska Native
  • Asian
  • Native Hawaiian or Other Pacific Islander
  • Hispanic or Latino

Recently, great strides have been made, and the likelihood of finding a match has increased dramatically for patients from all racial and ethnic groups.


Figure 1.

Growth of Marrow Donors on the Registry


Line chart showing the growth of marrow donors on the Registry
View larger image (new window)  Detailed Description [D]

The Registry contains more than 7 million potential donors.

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Figure 2.

Growth of Cord Blood Units on the Registry

Line chart showing the growth of cord blood units on the Registry
View larger image (new window)   Detailed Description [D]

The growth of cord blood units has increased significantly. In 2008, the Registry contained nearly 90,000 cord blood units; more than 2,500 of these units were from the NCBI.

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Figure 3.

Diversity of Cord Blood Units on the Registry


Pie chart showing the diversity of cord blood units on the Registry
View larger image (new window)   Detailed Description [D]

More than 37,000 cord blood units on the Registry in 2008 were from donors who identified their race or ethnicity as:

  • Black or African-American
  • American Indian or Alaska Native
  • Asian
  • Native Hawaiian or Other Pacific Islander
  • Hispanic or Latino
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Figure 4.


Diversity of Marrow Donors on the Registry


Pie chart showing the diversity of marrow donors on the Registry
View larger image (new window)   Detailed Description [D]

More than 2 million volunteers on the Registry in 2008 were from these racial and ethnic communities:

  • Black or African-American
  • American Indian or Alaska Native
  • Asian
  • Native Hawaiian or Other Pacific Islander
  • Hispanic or Latino
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Figure 5.


Marrow Donors on the Registry by Race and Ethnicity


As of September 30, 2008, the race and ethnicity of potential marrow donors on the Registry were as follows:

Volunteer Marrow Donors on the Registry by Race
American Indian or Alaska Native Nearly 83,000 (1.0%)
Asian More than 520,000 (7.0%)
Black or African American More than 550,000 (8.0%)
Native Hawaiian or Other Pacific Islander More than 10,000 (0.1%)
White More than 5.3 million (73.0%)
Multiple Race More than 210,000 (3.0%)


Volunteer Marrow Donors on the Registry by Ethnicity
Hispanic or Latino* Nearly 690,000 (9%)
*Volunteer donors are asked to record both their race and ethnicity. Volunteers who recorded their ethnicity as Hispanic or Latino are also included in one of the above racial groups.  

 

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Figure 6.


Cord Blood Units on the Registry by Race and Ethnicity


As of September 30, 2008, the race and ethnicity of cord blood units on the Registry were as follows:

Cord Blood Units on the Registry by Race
American Indian or Alaska Native Nearly 200 (0.2%)
Asian More than 6,300 (7.0%)
Black or African American More than 6,000 (7.0%)
Native Hawaiian or Other Pacific Islander Nearly 100 (0.1%)
White More than 56,000 (64.0%)
Multiple Race More than 9,000 (10.0%)


Cord Blood Units on the Registry by Ethnicity
Hispanic or Latino*  More than 15,000 (17%)
*Both the race and ethnicity of cord blood units are recorded. Cord blood units recorded as Hispanic or Latino ethnicity are also included in one of the above racial groups.

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Last Updated: May 20, 2009

Registry Data
The Program’s Registry, also called the Be The Match RegistrySM, is operated under Federal contracts by the National Marrow Donor Program® (NMDP). Registry data are reported from Oct. 1 - Sept. 30 by the NMDP.
Patient Outcomes
Find more information about outcomes using unrelated marrow donors or cord blood units from the Registry.
Successful Outcomes Depend on a Matching Donor
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