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H H S Department of Health and Human Services
Health Resources and Services Administration
Blood Cell Transplant

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Donor Registry Data

Data about the numbers of potential marrow donors and donated umbilical cord blood units listed on the donor registry of the C.W. Bill Young Cell Transplantation Program (Program), including the National Cord Blood Inventory, are reported annually.

Increasing the numbers of marrow donors and cord blood units on the donor registry are requirements of the Program. To help more people who have difficulty finding a matching donor, special emphasis is placed on registering marrow donors and collecting cord blood units from these communities:

  • American Indian or Alaska Native
  • Asian
  • Black or African-American
  • Hispanic or Latino
  • Native Hawaiian or Other Pacific Islander

The growth in numbers of marrow donors and cord blood units, plus the diversity of races and ethnicities on the registry, are improving all patients' chances of finding the match they need.

On this page:

Figure 1. Growth of Marrow Donors on the Registry 

Growth of Marrow Donors on the Registry.

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The registry contains more than 11 million potential donors.

Figure 2. Growth of Cord Blood Units on the Registry 

Growth of Cord Blood Units on the Registry.

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More than 193,000 cord blood units are on the registry. This total includes more than 61,200 units from the National Cord Blood Inventory (NCBI), with over 8,300 NCBI units added in 2013.

Figure 3. Diversity of Cord Blood Units on the Registry 

Diversity of Cord Blood Units on the Registry.

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Nearly 88,000 cord blood units on the registry in 2013 were from donors who identified their race or ethnicity as:

  • American Indian or Alaska Native
  • Asian
  • Black or African-American
  • Hispanic or Latino
  • Native Hawaiian or Other Pacific Islander

Figure 4. Diversity of Marrow Donors on the Registry 

Diversity of Marrow Donors on the Registry.

View larger image, Detailed Description [D]

Nearly 3 million volunteers on the registry in 2013 were from these racial and ethnic communities:

  • American Indian or Alaska Native
  • Asian
  • Black or African-American
  • Hispanic or Latino
  • Native Hawaiian or Other Pacific Islander

Figure 5. Marrow Donors on the Registry by Race and Ethnicity 

As of September 30, 2013, the race and ethnicity of potential marrow donors on the registry were as follows:
Volunteer Marrow Donors on the Registry by Race
American Indian or Alaska NativeMore than 122,000 (1%)
AsianMore than 769,000 (7%)
Black or African AmericanNearly 746,000 (7%)
Native Hawaiian or Other Pacific IslanderMore than 17,000 (less than 2%)
WhiteMore than 7.4 million (65%)
Multiple RaceMore than 441,000 (4%)
 
Volunteer Marrow Donors on the Registry by Ethnicity
Hispanic or Latino*More than 1.1 million (10%)

*Volunteer donors are asked to record both their race and ethnicity. Volunteers who recorded their ethnicity as Hispanic or Latino are also included in one of the above racial groups.

Figure 6. Cord Blood Units on the Registry by Race and Ethnicity  

As of September 30, 2013, the race and ethnicity of cord blood units on the registry were as follows:
Cord Blood Units on the Registry by Race
American Indian or Alaska NativeMore than 300 (2%)
AsianNearly 19,000 (10%)
Black or African AmericanNearly 15,000 (8%)
Native Hawaiian or Other Pacific Islander201 (less than 1%)
WhiteNearly 117,000 (60%)
Multiple RaceNearly 18,000 (9%)

 

Cord Blood Units on the Registry by Ethnicity
Hispanic or Latino*More than 36,000 (19%)

*Both the race and ethnicity of cord blood units are recorded. Cord blood units recorded as Hispanic or Latino ethnicity are also included in one of the above racial groups.

Donor Registry Data

The Program’s donor registry, also called the Be The Match Registry®, is operated under Federal contracts by the National Marrow Donor Program® (NMDP). Donor registry data are reported from Oct. 1 - Sept. 30 by the NMDP.

Patient Outcomes

Find more information about patient survival using marrow donors or donated cord blood units from the registry.

Successful Outcomes Depend on a Matching Donor