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H H S Department of Health and Human Services
Health Resources and Services Administration
Blood Cell Transplant

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Office of Patient Advocacy/Single Point of Access Contract Summary

The Office of Patient Advocacy (OPA) and Single Point of Access (SPA) are combined into one component of the C.W. Bill Young Cell Transplantation Program (Program). According to the Program's contract, the OPA/SPA will:

  • Be an advocate for patients. This includes:
    • Providing one-to-one support from patient services coordinators to help patients, families, and health care professionals, beginning from diagnosis and continuing through survivorship.
    • Identifying and reducing barriers to transplant, including financial coverage and insurance.
    • Communicating with patients in a manner understandable to them, such as providing information that fits with the patients’ culture and language.
    • Ensuring patient confidentiality throughout the search and transplant process.
    • Conducting patient satisfaction surveys and identifying ways to improve the resources and services of the OPA/SPA.
    • Evaluating the need for bone marrow or umbilical cord blood transplants and for donors and cord blood units, with special emphasis on people from racially or ethnically diverse backgrounds.
  • Provide information to patients, families, and health care professionals, such as:
    • Diseases that may be treated with a bone marrow or cord blood transplant.
    • The transplant process, from diagnosis through survivorship.
    • Other treatment options.
    • Patient outcomes and transplant costs for each transplant center in the Program.
  • Provide an efficient search process through one electronic system (Single Point of Access). This process will: 
    • Allow patients and doctors to electronically explore the possibility of finding a donor or cord blood unit.
    • Search worldwide for all sources of cells.
    • Allow a cord blood unit to be reserved or begin further testing of a potential donor.
    • Provide updates of the search progress to patients, doctors, and transplant centers.
  • Provide experts to guide patients and health care professionals through the search and tissue typing processes.
  • Develop and maintain a Program website.

To learn about the contractor for the OPA/SPA, see National Marrow Donor Program, a Program Contractor.

Program Contractor

Learn how this organization is fulfilling its contract.

Authorized to Help More Patients

Learn how the Program helps more patients have a successful bone marrow or umbilical cord blood transplant. The Program is authorized by the Stem Cell Therapeutic and Research Act of 2005, Public Law 109-129 and the Stem Cell Therapeutic and Research Reauthorization Act of 2010, Public Law 111-264.

Bone Marrow and Cord Blood Donation and Transplantation

A bone marrow or cord blood transplant replaces a patient's diseased cells with healthy blood-forming cells. These cells can come from the marrow of a donor or the umbilical cord blood that is collected after a baby is born.

Learn more about: