In 2017, the Health Resources and Services Administration (HRSA) awarded three contracts to support the functions of the various components of the C.W. Bill Young Cell Transplantation Program (CWBYCTP). The Center for International Blood and Marrow Transplant Research® (CIBMTR) was awarded the Stem Cell Therapeutic Outcomes Database (SCTOD) component of the CWBYCTP.
The CIBMTR is a research collaboration between the National Marrow Donor Program® (NMDP)/Be The Match® and the Medical College of Wisconsin (MCW). The CIBMTR collaborates with the global scientific community to advance hematopoietic cell transplantation (HCT) and cellular therapy worldwide to increase survival and enrich quality of life for patients. The CIBMTR facilitates critical observational and interventional research through scientific and statistical expertise, a large network of transplant centers, and a unique and extensive clinical outcomes database.
The prospective and observational research is accomplished through scientific and statistical expertise, a large network of transplant centers and a clinical database of more than 425,000 patients. Support for the program is provided, in part, by contract from the Health Resources and Services Administration. Successful use of this funding has resulted in the completion of hundreds of studies that positively impact both clinical practice and transplant patients.
The CIBMTR contributes to scientific literature and encourages transplant experts to use CIBMTR data for their research. The CIBMTR has worked closely with federal agencies and global experts in various fields, including hematology, oncology, transplantation, histocompatibility, biostatistics, psychology, and health policy.
The CIBMTR continues to develop and maintain an electronic information system, which was begun by its predecessors. This system collects and manages data about bone marrow and cord blood transplants and provides this information to interested individuals, organizations, and regulatory agencies. The CIBMTR has expertise in histocompatibility and bioinformatics. It is also experienced in creating and managing research sample repositories.
CIBMTR’s technical experience, history of working closely with experts from a broad range of fields, and strong relationships with patient groups will continue to help meet the Program’s goals for the Stem Cell Therapeutic Outcomes Database.